Managing her husband Todd's health needs means continuing to improve the processes for his ALS caregivers, writes columnist ...

Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...

Across Ontario this June, thousands walk not just for a cause, but for their loved ones affected by a devastating disease: ...

Diagnosed with ALS at 33, Brooke Eby launched ALStogether, an online community offering connection, advice, and resources.

When Mindy Uhrlaub got tested to see if she was a carrier of the fatal mutation that causes the amyotrophic lateral sclerosis (ALS) her mom had, her neurogeneticist at Stanford told her that if she ...