#rettsyndrome #seizureawareness #prettyawesome #raredisease #manitobarett | Manitoba Rett Syndrome Association
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#rettsyndrome #seizureawareness #prettyawesome #raredisease #manitobarett | Manitoba Rett Syndrome Association
For many girls with Rett syndrome, absence seizures look like this: a moment of stillness, a glassy gaze, a brief disconnection. They might last just seconds, but they can happen often.If you see this, here's what to do: Stay calm. They will return. Keep them safe. Move away from anything they could hit. Note the time. How long did it last ...
1 month ago
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Rett syndrome never stops.. on top of her struggles, sleeping seizures, issues with breathing.. now to know her hearts rhythm is another risk of sudden death… how is this life?! Just when you think you are getting through grieving, another stone gets thrown. (Long QT) 🫀 #rettsyndrome #longqt #grief #heartbroken #momlife
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