Acute Intermittent Porphyria: Laura's Story #medicalstories #medical #rarediseases #disease
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Acute Intermittent Porphyria: Laura's Story #medicalstories #medical #rarediseases #disease
5.9K viewsJun 26, 2025
YouTubeMedical Stories
Geoff’s story is one of resilience, misdiagnosis, and survival.
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Geoff’s story is one of resilience, misdiagnosis, and survival.
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YouTubeUnited Porphyrias Association
This is the first time we are sharing a story of someone living with ALAD Porphyria (ADP)
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YouTubeUnited Porphyrias Association
This is Congenital Erythropoietic Porphyria
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YouTubeUnited Porphyrias Association
Tommy's story with AIP.
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Tommy's story with AIP.
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YouTubeUnited Porphyrias Association
Jordan was only 32 years old when Acute Intermittent Porphyria (AIP) changed her life.
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Jordan was only 32 years old when Acute Intermittent Porphyria (AIP) changed her life.
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YouTubeUnited Porphyrias Association
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YouTubeUnited Porphyrias Association
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What are the acute porphyrias? #RareDisease #Photosensitivity
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YouTubeBritish Porphyria Association
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It took months to hear the words: Acute Intermittent Porphyria.
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YouTubeUnited Porphyrias Association
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Savanna's story with AIP.
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YouTubeUnited Porphyrias Association
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Kay's story with Acute Intermittent Porphyria 💜
3.3K views7 months ago
YouTubeUnited Porphyrias Association
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It was porphyria.
2.5K views8 months ago
YouTubeUnited Porphyrias Association
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For 20 years, no one believed her.
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YouTubeUnited Porphyrias Association
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It's Global Porphyria Day!💜
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YouTubeUnited Porphyrias Association
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169 views4 months ago
YouTubeUnited Porphyrias Association
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Why a rare disease diagnosis is the ultimate puzzle. 🧩
115 views4 months ago
YouTubeAlnylam Pharmaceuticals
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Hailey is 20 years old and lives with Variegate Porphyria (VP)
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YouTubeUnited Porphyrias Association
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For 12 years, Molly was told the pain was “all in their head.”
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YouTubeUnited Porphyrias Association
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Kasey's story with CEP 💜
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YouTubeUnited Porphyrias Association
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Acute Intermittent Porphyria | Day 19/50
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YouTubeDr. Nikita Nanwani
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What would you do if your child was diagnosed with a rare disease?
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YouTubeUnited Porphyrias Association
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Finding someone else with porphyria feels a little like finding a long-lost friend 🫂
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YouTubeUnited Porphyrias Association
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In recognition of #RareDiseaseWeek, we are sharing the story of Nate,
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YouTubeUnited Porphyrias Association
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Justin's Journey: CEP & Facial Reconstruction
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Understanding Porphyria: Pain Management Strategies
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